I am not making any resolutions for the next year
I just hope to be creative
I want to be compassionate and caring
I want to use my gifts to give back
and I know that God gave me things I need to "give back"
To honor God with my artsy stuff and use my powers for good
I was told by my neuro that I have a new lesion in the front temporal lobe, and it PROBABLY wont mean anything as to my MS sx.. hope that he knows what he is talking about
Of course my regular sx are enough trouble, but not as bad as they could be
But whatever is on the books for me this next year, I will honor God and his gifts, and work to be a good person, a good wife, and a good mother.
Thursday, December 29, 2011
Tuesday, November 1, 2011
What is a relapse?
I'm thinking - in my MS way, that my 2 summers in a row that I have been in great shape mentally and physically was my very own kinda remission.
And my every day every way sux kinda life is my normal MS.
So I also think that I may not be RRMS .. in the fact that I DONT have the ups and downs of MS..
I have the sux kinda MS... just not that bad... but not good...
AND of course I LOOK SO GOOD...
What brings this to my holey brain is the SX reared up as soon as the cooler weather started, and even when I was working my behind off doing chores to help the DH, I was exhausted, but not in pain like I am now.
And the fact that I have sleep problems again.. because my brain keeps me awake again.. when I should be able to roll over and doze back into la la land... I start with head music.. and it is not good to lay in bed with the jingles from TarJAY running thru my head... or from the big box DIY stores... ick.
And I keep hearing my phone alarm going off, when it isn't...
ah its the little things that drive me nuts...
And my every day every way sux kinda life is my normal MS.
So I also think that I may not be RRMS .. in the fact that I DONT have the ups and downs of MS..
I have the sux kinda MS... just not that bad... but not good...
AND of course I LOOK SO GOOD...
What brings this to my holey brain is the SX reared up as soon as the cooler weather started, and even when I was working my behind off doing chores to help the DH, I was exhausted, but not in pain like I am now.
And the fact that I have sleep problems again.. because my brain keeps me awake again.. when I should be able to roll over and doze back into la la land... I start with head music.. and it is not good to lay in bed with the jingles from TarJAY running thru my head... or from the big box DIY stores... ick.
And I keep hearing my phone alarm going off, when it isn't...
ah its the little things that drive me nuts...
Thursday, September 8, 2011
#6
Hard to believe his maturity at only 6 - YEARS OLD. And so very very beautiful. A chick magnet for sure.
Wednesday, August 31, 2011
dreams
When dreams come so vividly
not a flash of a dream but full and real
I was in a mixed media class one day
and the next day was told that our class was mooved
because of remodeling
Out of habit (or MS) I went to the class,
and found it full of pre-schoolers and some adult "aides"
I realized my mistake and headed to the new
"substitute" class room
ick
small and dark and crowded
TO ME the other classroom was too large for the pre-schoolers
Flash to the next scene and I am talking with the adults in the
pre- school room
A cell phone rings with a catchy toone, and my knees start bopping
(as my knees will do)
As cell phones should be turned off in this case
I motioned for the woman to leave it ringing
and continued to talk
until I caught the eye of a child
staring at me
while I bopped to the ring tone
I turned to the room, and the children were bopping
JUST LIKE ME
OMG = I am teaching dance again...
Flash again and my MIXED MEDIA class was back
in the big bright room
And I am bopping with the preschoolers in the bright
sunny atrium of the school - perfect life once again
I started out my social "career" working in an early ed program when my oldest was just about 2 years old, and it was in the un-used basement of an elementary school that was in walking distance of my house.
In the course of years that I worked in that program I got certified in Aerobic Dance and had always "danced" as a child... that was my creative outlet.
I was a partner in a DANCE school in the years I was a stay at home mom, but I wasnt staying at home, I was dancing and dragging my 2 little girls to my dancing school...
that was a dream time in real time
not a flash of a dream but full and real
I was in a mixed media class one day
and the next day was told that our class was mooved
because of remodeling
Out of habit (or MS) I went to the class,
and found it full of pre-schoolers and some adult "aides"
I realized my mistake and headed to the new
"substitute" class room
ick
small and dark and crowded
TO ME the other classroom was too large for the pre-schoolers
Flash to the next scene and I am talking with the adults in the
pre- school room
A cell phone rings with a catchy toone, and my knees start bopping
(as my knees will do)
As cell phones should be turned off in this case
I motioned for the woman to leave it ringing
and continued to talk
until I caught the eye of a child
staring at me
while I bopped to the ring tone
I turned to the room, and the children were bopping
JUST LIKE ME
OMG = I am teaching dance again...
Flash again and my MIXED MEDIA class was back
in the big bright room
And I am bopping with the preschoolers in the bright
sunny atrium of the school - perfect life once again
I started out my social "career" working in an early ed program when my oldest was just about 2 years old, and it was in the un-used basement of an elementary school that was in walking distance of my house.
In the course of years that I worked in that program I got certified in Aerobic Dance and had always "danced" as a child... that was my creative outlet.
I was a partner in a DANCE school in the years I was a stay at home mom, but I wasnt staying at home, I was dancing and dragging my 2 little girls to my dancing school...
that was a dream time in real time
Wednesday, July 20, 2011
Saturday, July 2, 2011
Wednesday, June 15, 2011
Camping Days
Friday, May 6, 2011
The gift of time and c debe art..
A couple of new art clocks.
I have been crazy busy since mr boss retired, and I have been running
the show here at the office.
I also have been in a state of grace - a real live remission of my SX...
Between getting off all the pain meds and using plain aspirin and some
vitamin suppliments I feel totally great...
Of course I hope and pray for a long respite...
Friday, February 11, 2011
Friday, January 14, 2011
re tired
Re Tired
Makes me think of a semi truck, and all 18 wheels are needing re tired
think we can RE TIRE this thing?
For me, I think I have at least 8 tires needing re placed
two of my tires are droopy right now, it is almost lunch time
two of my other tires are buzzing and hissing, so I am playing Pandora Radio on the computer
I may be having a ramp up of my cold sx
Or it is stress
The Hubby will be finished work at the end of the month we think... re tired
Mr Boss will be re tired in March
Makes me think of a semi truck, and all 18 wheels are needing re tired
think we can RE TIRE this thing?
For me, I think I have at least 8 tires needing re placed
two of my tires are droopy right now, it is almost lunch time
two of my other tires are buzzing and hissing, so I am playing Pandora Radio on the computer
I may be having a ramp up of my cold sx
Or it is stress
The Hubby will be finished work at the end of the month we think... re tired
Mr Boss will be re tired in March
Where am I?
Tuesday, January 11, 2011
Snow and Life and Stuff
So it is snowing
it isn't unusual in the Midwest
in January
My parents live in South Carolina
it is pretty unusual - snow
they have more snow on the ground
than Missouri
Right now I am watching it blow in front of the big windows at the front of the office
It is an old building
it is cold
it is pretty
but it is cold
I can't type with my sore hand in a glove, so I have a hand warmer on my lap
The sensitive area of my hand is also reacting to fabric,
it actually hurts to have something TOUCHING it
Doesn't that scream nerve damage?
After a bit I can slip on a big cotton knit garden glove
tis shapeless and ugly
but it is not constricting
If I could hold a needle I would make nice little stitches
If I could draw on cotton I could draw cute little designs
Pretty isn't real practical
Of course stazon ink and some stamps.... dammm I don't have then HERE
Another list of things to haul to the office when it is slow
If it is a snow day at the schools we should have snow days in our office
Folks with kids are at work and the kids are at a sitter
Folks that are older will not come out into this mess
it isn't unusual in the Midwest
in January
My parents live in South Carolina
it is pretty unusual - snow
they have more snow on the ground
than Missouri
Right now I am watching it blow in front of the big windows at the front of the office
It is an old building
it is cold
it is pretty
but it is cold
I can't type with my sore hand in a glove, so I have a hand warmer on my lap
The sensitive area of my hand is also reacting to fabric,
it actually hurts to have something TOUCHING it
Doesn't that scream nerve damage?
After a bit I can slip on a big cotton knit garden glove
tis shapeless and ugly
but it is not constricting
If I could hold a needle I would make nice little stitches
If I could draw on cotton I could draw cute little designs
Pretty isn't real practical
Of course stazon ink and some stamps.... dammm I don't have then HERE
Another list of things to haul to the office when it is slow
If it is a snow day at the schools we should have snow days in our office
Folks with kids are at work and the kids are at a sitter
Folks that are older will not come out into this mess
Friday, January 7, 2011
"It's impossible to awaken a man who is pretending to be asleep"
Does that mean something to me?
It is a Navaho saying, and I ran across it today.
I think that it is very spot on for me right now.
I will dwell on that today.
It is a Navaho saying, and I ran across it today.
I think that it is very spot on for me right now.
I will dwell on that today.
Thursday, January 6, 2011
A pain gel ???
So the pain doc gave me a topical gel to use on my thumb area that is hurting like hell painful and just tells me use it when I need it, and it should help
So I have eased myself off one of the anal gee sicks (pills) and stopped another one that was giving me trouble with my emotional and mental balance
So I am down to ONE, and guess what I ran out of, and didn't get to the pharmacy to pick up in a timely manner
So I am in really nasty bitchy can't stand it pain and grab the topical gel, rub a little on my "area" and put on my nice soft spa glove, and try not to type for an hour.. except to look it up on the Internet
So if I use this gel every 4 hours - like regularly - I should have great relief from my ostio artha ritis
or what ever is causing the pain..
Well gee this gel is the same stuff that is the ONE pill that seemed to be helping ZIPSOR...
And I gave up Zipsor because of the cost!
So now that I have met my deductable I will go back on it.. cause the OTHER stuff didn't do it for me...
So I have eased myself off one of the anal gee sicks (pills) and stopped another one that was giving me trouble with my emotional and mental balance
So I am down to ONE, and guess what I ran out of, and didn't get to the pharmacy to pick up in a timely manner
So I am in
So if I use this gel every 4 hours - like regularly - I should have great relief from my ostio artha ritis
or what ever is causing the pain..
Well gee this gel is the same stuff that is the ONE pill that seemed to be helping ZIPSOR...
And I gave up Zipsor because of the cost!
So now that I have met my deductable I will go back on it.. cause the OTHER stuff didn't do it for me...
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